My Poor Tongue (Part One)


Last week during the night I was jolted awake because my tongue was sandwiched between my tightly clenched upper and lower jaws and I thought I was going to bite it off. Somehow I was able to wake Mark up and make him understand that my tongue was lodged between my teeth. Mark tried to pry my locked jaw open and finally my lower jaw gave a little so I could pull my tongue out. It’s a good thing I was wearing my upper bite splint otherwise I’m sure I would have bitten my tongue off. I was so relieved to have my tongue back in my mouth so I could go back to sleep but then my jaw locked up again and again, trapping my tongue between my teeth each time. By that point I was afraid to go back to sleep so I asked Mark to get me up and into my chair. It was only three in the morning and I knew I wouldn’t be able to sit in my chair for the rest of the night so I reluctantly got back into bed. I slept for the rest the night with my head up hoping that gravity would keep my tongue in my mouth and it worked. There was no more tongue biting that night and I was relieved but then I thought to myself ‘What’s next? What more can ALS take from me?’.


6 thoughts on “My Poor Tongue (Part One)

  1. Rosemary, I woke up at 3 AM to thoughts that made me frightened. I decided to get busy and do something….then came to my computer and read your blog…you always inspire me & make me realize my problems are so small. Thank You Rosemary, you have helped me to find my way thru so many issues in my life. Sending you a Big Hug! Marianne Strade

  2. Rosemary, you are an amazing person. So smart to do the things you did last night! I have a feeling you love to have communication back. Most of us I’m sure have never known anyone with this disease and don’t know quite what words to say back to you. So don’t ever feel we don’t read or follow. We do because you are simply amazing. And if we ever find ourselves having to deal with this disease or any other for that matter we will all be better informed and inspired because of you. Keep writing and we’ll keep reading.

  3. So sorry you had that difficult experience. Must have been frightening. Glad Mark was there to help you. You are a beacon of light in this world, in spite of your ALS. Shine on!

  4. What a scary experience. I agree with Janet. As much as ALS has taken from you…. You fight back with your faith and courage. Another obstacle you have faced with fear and pulled through. Love and Hugs 24/7 😉

  5. Oh Rosemary, I was so happy to spend some time with you today at Norma Morton’s memorial service. And I have just now gotten up to date on your blog. I did enjoy talking with you and Mark and updating you about Steve and I, our two children and two lovely granddaughters, Kennedy and Emma. You are as lovely as the last I saw you when we spent an evening with other friends at Mack and Sue’s home. We all had a great time; and I’m sure that none of us take that for granted. God bless. Love, Denise Babcock

  6. Rosemary, you’re a love! So sorry that frightening thing happened. What ALS can’t take from you is your faith, grace in handling this disease, and your wonderful ability to share your joys, fears, and terrors with all of us! I praise God for having you in my life. You are a blessing to all! Love and hugs!

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