Last week during the night I was jolted awake because my tongue was sandwiched between my tightly clenched upper and lower jaws and I thought I was going to bite it off. Somehow I was able to wake Mark up and make him understand that my tongue was lodged between my teeth. Mark tried to pry my locked jaw open and finally my lower jaw gave a little so I could pull my tongue out. It’s a good thing I was wearing my upper bite splint otherwise I’m sure I would have bitten my tongue off. I was so relieved to have my tongue back in my mouth so I could go back to sleep but then my jaw locked up again and again, trapping my tongue between my teeth each time. By that point I was afraid to go back to sleep so I asked Mark to get me up and into my chair. It was only three in the morning and I knew I wouldn’t be able to sit in my chair for the rest of the night so I reluctantly got back into bed. I slept for the rest the night with my head up hoping that gravity would keep my tongue in my mouth and it worked. There was no more tongue biting that night and I was relieved but then I thought to myself ‘What’s next? What more can ALS take from me?’.
Live Simple, Love Like Crazy 