Category Archives: Writing

ALS – My Tobii


I never thought I would get excited about writing the minute I got out of bed but now I can hardly wait until Mark is able to wheel me into the living room where Tobii and I meet every morning. I love writing and I love reading emails because those are the only two things I can do on my own.

Every day I spend about three to four hours with Tobii but we don’t always get along and we’re constantly working on our differences to improve our typing methods. Tobii doesn’t like when light reflects off her screen and is sensitive to some vibrations so we are constantly moving to find the right spot in our home to hang out. If moving doesn’t help and I’m still struggling to type with my Eye Gaze machine we recalibrate my eyes which usually helps and I am back to writing again.

It’s been almost a year since I started using my Tobii for blogging. Now it seems normal that I type with my eyes and not with my fingers. Who would have thought I would be typing with my eyes to communicate. Now it’s time for me to take the next step and use it for talking.